Attend the Rare Disease Day
Register to join colleagues, patient advocates, and patients at Rare Disease Day, offered both IN PERSON and via LIVE STREAM. Rare Disease Day is designed to increase awareness of rare diseases by bringing together healthcare professionals (including physicians, physician associates, nurses, and social workers), patients and caregivers, and community members to generate positive action for the rare disease community.
By Attending, You Will Be Able To:
- Recognize Rare Disease Day and its impact on raising awareness about rare diseases.
- Summarize the latest research findings on a range of rare diseases, including the underlying genetic or molecular mechanisms, potential risk factors, and disease progression.
- Identify treatment options for rare diseases, including novel drug therapies, gene therapies, and personalized medicine approaches.
- Discuss experiences of patients living with rare diseases and their caregivers, including the influence of the healthcare team to provide effective communication and resources to improve patient care.
Who Should Attend
The Summit is directed to healthcare practitioners (including physicians, nurse practitioners, nurses, physician assistant), social workers, researchers, hospital and corporate administrators, community members, and patients and caregivers.
Endorsed by:
