8:00 am |
Registration, Continental Breakfast and Visit Exhibits
|
8:45 am |
Opening Remarks & Welcome
Activity Directors Daniel Sullivan, MD and Julie Kaplan, MD
Representative Bride Sweeney |
9:00 am |
National Organization for Rare Disorders Welcome Message
|
9:10 am |
The role of genetics in rare diseases
Rocio Moran, MD |
9:20 am |
Patient & Caregiver Testimonials
|
9:40 am |
How do you know if you’ve repaired a disease-causing gene?
Mitchell Drumm, PhD |
10:00 am |
Myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD)
Justin Abbatemarco, MD |
10:20 am |
Patient & Caregiver Testimonials
|
10:50 am |
Break & Visit Exhibits
|
11:10 am |
The Oxford-Harrington Rare Disease Centre: Advancing Treatments for Rare Disease
Matthew Anderson, MD, PhD |
11:30 am |
When Histiocytes Go Awry
Sudipto Mukherjee, MD, PhD, MPH |
11:50 am |
Clinical Expert Panel Discussion
|
12:20 pm |
Closing Remarks
Chelsey Judge, PhD |
12:30 pm |
Lunch, Networking & Visit Exhibits
|
1:30 pm |
Adjourn
|
